Alright! She tested and bolused properly for Tuesday through Friday. So she can go to camp, promising to do well. I believe she will since she usually doesn't let things down unless she's with me. I, perhaps wrongly, think that that's the sign she is well adjusted and knows I am here for her. She's afraid of her dad and certainly doesn't want trouble at camp. Now I have to step up preparation for camp. She's in charge of packing clothes and stuff. I handle diabetes supplies. Thank goodness for fed ex if she runs out. I generally send 3x what she'll need, so she's never had a problem. The issue is the increased activity level has her low regularly, so she tests every two hours. Last year, her pump got waterlogged, but we survived with needles and Animas customer service.
More later.
Saturday, June 20, 2009
Wednesday, June 17, 2009
Why?
A long-time lurker and sometime commentator around the OC, I take the plunge.
Late last summer, a routine quarterly endo visit revealed the first of a string of rising A1cs. At first I blamed it on the relaxed routine of summer and surmized the return to school routine would get us back on track. Not so. At one point during the next quarter, Peony complained about a funny numbness in her toes. I didn't put two and two together until the endo did. Scary. We left that visit energized to reverse the trend by going back to the basics and doing a better job of counting carbs. I got some push back for using "the book", but generally I thought we did well. Things did not improve at the next visit and in fact got worse. The pump and meter download showed she was high 70 percent of the time, low 20 percent of the time and in range 10 percent of the time. I gasped. The endo said "I know why" as she showed me the graph showing bolus amounts which flat-lined at 0. ZERO! No boluses for four and five days straight. She "forgot"!!! We left with her promise to do better. That brings us to eight weeks later, this Monday, June 15, 2009. The A1c is up and again no boluses. I lost it. Firmly explaining that this is not a matter of forgetting, it is a choice. I cried. She sat emotionless. I posted on Juvenation and was amazed to have multiple responses from women who quit bolusing at 13 or later. There is a need for conversation and advice and thus, this blog.
More later.
Late last summer, a routine quarterly endo visit revealed the first of a string of rising A1cs. At first I blamed it on the relaxed routine of summer and surmized the return to school routine would get us back on track. Not so. At one point during the next quarter, Peony complained about a funny numbness in her toes. I didn't put two and two together until the endo did. Scary. We left that visit energized to reverse the trend by going back to the basics and doing a better job of counting carbs. I got some push back for using "the book", but generally I thought we did well. Things did not improve at the next visit and in fact got worse. The pump and meter download showed she was high 70 percent of the time, low 20 percent of the time and in range 10 percent of the time. I gasped. The endo said "I know why" as she showed me the graph showing bolus amounts which flat-lined at 0. ZERO! No boluses for four and five days straight. She "forgot"!!! We left with her promise to do better. That brings us to eight weeks later, this Monday, June 15, 2009. The A1c is up and again no boluses. I lost it. Firmly explaining that this is not a matter of forgetting, it is a choice. I cried. She sat emotionless. I posted on Juvenation and was amazed to have multiple responses from women who quit bolusing at 13 or later. There is a need for conversation and advice and thus, this blog.
More later.
So, now we are at Wednesday. My family routine is that I get home from work and make four plates of dinner. I know, family dinner and all, but we only have family dinner Friday, Saturday and Sunday. Other days, everyone eats when they come in and micro my plate. The last two days, Peony's dinner was uneaten when I came down to the kitchen to go to work.
Today, I asked her how her numbers were and she says 22os.
I told her Tuesday that I will download everything on Saturday and if she isn't testing and bolusing properly, she will not go to camp on Monday. It's not a diabetes camp, it's an all around girl camp with horsebackriding, waterskiing, archery, pottery,etc, and she loves it.
we will see. I mean it.
More later.
The Cast of Characters
Anonlurkermom is me. I remain anonymous, but no longer lurk.
Hemingway, my 17-year old high school senior number one son.
Ladybug, my 15-year old high school sophomore daughter.
Peony, my 13-year old eighth grade daughter, the star of this blog.
RandMcNally, my 10-year old fifth grade son.
Hemingway, my 17-year old high school senior number one son.
Ladybug, my 15-year old high school sophomore daughter.
Peony, my 13-year old eighth grade daughter, the star of this blog.
RandMcNally, my 10-year old fifth grade son.
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